WHAT IS ALD?
Adrenoleukodystrophy (ALD) is a disease that affects the nervous system of children and adults who inherit the genetic defect. The myelin sheath, an important component of nervous system cells, is degraded, causing eventual paralysis. ALD is X-linked, which means that symptoms manifest primarily in males. Females that carry the gene defect have a 50% chance of passing it onto their sons, and may also show some mild symptoms.
STORIES FROM PEOPLE LIVING WITH ALD
Storytelling is one of the most powerful forms of sharing information. Here, we give families affected by ALD space to share their experiences, triumphs and struggles. Listening is the best way to learn how we can aid these families.
Check out our latest fundraising initiative, Brushstrokes!
WHO WE ARE
WHAT IS SOLVING X?
We are more than an ALD information source. We are more than a hub for donation. We are the solution. Solving X is an action-directed organization dedicated to spearheading a new generation of ALD support. We believe our pillars of value will revitalize the fight to solve for X.
We aim to make information on ALD accessible to everyone. Understanding and awareness is key.
In the age of connectivity, we should get to know each other. We want to bring ALD families and supporters together in unity.
Supporting our champions in research is crucial. We want to do our part to contribute to the medical front.
We believe in the value of now. There is no action we are not willing to take, big or small, to push the fight against ALD forward.
WHY THE SICKKIDS FOUNDATION?
The Research Institute at The Hospital for Sick Children (SickKids) in Toronto, Canada, is a world-renowned leader in cutting-edge paediatric research. Scientists and investigators at the institute are at the forefront of medical advances. SickKids believes in family-centred care and are in full support of scientific and clinical initiatives.
Get In Touch
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